Week Ending 21 June 06

Hello everyone, thank you for taking the time to visit my website.

Well what have I been up to? Well, quite a lot actually. here is a medical update:-

I saw the second Opthalmist who has said that my eye sight is okay and that if I do have a squint then it is of no
worry. That was good news, I see her again in about 4 months to be re-tested.

About 6 weeks ago I saw a Renal Consultant from Bristol childrens hospital because mum and dad have been
concerned over my ability pass urine. He has diagnosed me as having a Neuropathic bladder which is obviously bad
news but at the same time it is good because at least we know where the trouble is.

The Neuropathic bladder is caused by an interuption of the messages going to the brain from the bladder and vice
versa, because I have spinal issues it is more than likely that they are to blame for the bladder side of it.

I was put on some medicine which would help me control the bladder a bit more and after a month I had some tests to
see if I was retaining any fluid in my bladder. (This fluid retention is bad news and if it happens you need to be
catheterised every 3 to 4 hours during the day to ensure that the bladder empties).

As the tests progressed it looked quite bleak for my mum and dad, the nurse doing the tests told my them that they
would more than likely have to catheterise me. They decided to have one more go of sitting me on the potty and this
time I had a big wee, they scanned my bladder and found that it was empty...........Brilliant news.

So the outcome of that was.....I will remain on medication and not need catheterising, at least not at the moment.

At the moment I am on holiday with my Nan and Granddad, so mum and dad are having a quiet time at home. No
doubt missing me.

Anyway, I will update again after my holiday, hopefully with some photos.

Take care speak soon.

All my love

Aled

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